HER2 Support Group Forums - View Single Post - Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Rolepaul · 05-14-2012, 12:56 PM

Darita,

YOur progression is very similar to Nina's! She is being treated at MD Anderson in Houston Texas. I heard UCLA might also be treating patients with IT Herceptin. She is using an ommaya reservoir. We are trying to get the topotecan reduced because I heard that only Herceptin will not cause meningitis long term. Good luck to you. MRI for brain and spine 5/30.

Paul

05-14-2012, 12:56 PM	#3
Rolepaul Senior Member Join Date: Jan 2012 Location: Boulder Colorado as of January 2013 Posts: 389	Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease Darita, YOur progression is very similar to Nina's! She is being treated at MD Anderson in Houston Texas. I heard UCLA might also be treating patients with IT Herceptin. She is using an ommaya reservoir. We are trying to get the topotecan reduced because I heard that only Herceptin will not cause meningitis long term. Good luck to you. MRI for brain and spine 5/30. Paul