Vickie, I was thinking about getting a 3rd opinion on this...but the *delay* they've caused me by putting off my 2nd opinion kind of defeats the whole purpose of me staying on herceptin. I wanted to continue herceptin *without* any inturruptions till my two yr mark and then stop it. But they pulled me off of it at one year mark...then delayed my 2nd opinion for almost 3 months! So there went 3 months that I could of been on it down the toilet so to speak. But I can't worry about what could of been...just keep moving forward. I just feel like I should still be doing something...hope that feeling goes away soon.
Thanks so much for your reply Vickie. I will keep you in my prayers that Tykerb kicks butt and works wonders for you. I'm so glad to hear your doing good on Tykerb.  May you be dancing with NED soon.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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