HER2 Support Group Forums - View Single Post - ~Chemo Begins Once More For Mighty Oak~5/8/09

Believe51 · 05-07-2009, 09:40 AM

Thanks ladies, I knew I could get the prayers and positive healing energy flowing, I just needed to ask.

Patty, the Magace never worked for Ed as well as we planned. I am so happy you mentioned this because it is important for others to learn this name just in case. We have been to a nutritionist in the past also but that did not tell me anything new. My career background is in cooking and baking, and I have always had a weakness in learning about nutrtion.

Nothing has helped. We know how we should be eating or atleast what we should not. Ed has been at the point that the OncoMan and the nutritionist is not too concerned with what he eats. Anything he can get down, even if it is full of sugar, doubled-edged sword if you ask me but vital for his survival. Even in the beginning when he was eating like a champ, all his life actually, he lost mega amounts of weight. The healthier he ate, the more pounds he shed. WomanofSteel, at one point I told Ed we were going to contact Stephen King and ask if Ed could be the star in "Thinner" if he ever did a remake. HoHum.

Some wives might bring home a 6-pack of beer for their husbands.......I bring home Ensure Plus (smiling). Mighty Oak is such a terrific patient and does all in his power. I guess that is why we feel so powerless. Thanks for keeping us safely in the channels of your hearts. Love>>Marie

05-07-2009, 09:40 AM	#7
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Thanks ladies, I knew I could get the prayers and positive healing energy flowing, I just needed to ask. Patty, the Magace never worked for Ed as well as we planned. I am so happy you mentioned this because it is important for others to learn this name just in case. We have been to a nutritionist in the past also but that did not tell me anything new. My career background is in cooking and baking, and I have always had a weakness in learning about nutrtion. Nothing has helped. We know how we should be eating or atleast what we should not. Ed has been at the point that the OncoMan and the nutritionist is not too concerned with what he eats. Anything he can get down, even if it is full of sugar, doubled-edged sword if you ask me but vital for his survival. Even in the beginning when he was eating like a champ, all his life actually, he lost mega amounts of weight. The healthier he ate, the more pounds he shed. WomanofSteel, at one point I told Ed we were going to contact Stephen King and ask if Ed could be the star in "Thinner" if he ever did a remake. HoHum. Some wives might bring home a 6-pack of beer for their husbands.......I bring home Ensure Plus (smiling). Mighty Oak is such a terrific patient and does all in his power. I guess that is why we feel so powerless. Thanks for keeping us safely in the channels of your hearts. Love>>Marie __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!