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Lori R · 06-10-2010, 03:44 AM

Dear Charlotte,
I was troubled by your post on a variety of levels.

Most importantly, it is up to each one of us individually to decide when we are ready to put down the fighting gloves. Not your Dr, family or friends.

Sounds like you are still up for a fight so tell your Onc that you expect him to be in your corner and come up with another option.

As you probably know, so many on the site have had great success with TDM-1 . Have you considered that as an option?

Many of our brother/sisters have had mets in multiple locations and have successfully pushed back the beast.

I encourage you to follow your heart and not allow someone else to push you in the wrong direction.

Sending warm, supportive hugs.....Lori

06-10-2010, 03:44 AM	#2
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Re: just placed on hospice Dear Charlotte, I was troubled by your post on a variety of levels. Most importantly, it is up to each one of us individually to decide when we are ready to put down the fighting gloves. Not your Dr, family or friends. Sounds like you are still up for a fight so tell your Onc that you expect him to be in your corner and come up with another option. As you probably know, so many on the site have had great success with TDM-1 . Have you considered that as an option? Many of our brother/sisters have had mets in multiple locations and have successfully pushed back the beast. I encourage you to follow your heart and not allow someone else to push you in the wrong direction. Sending warm, supportive hugs.....Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)