HER2 Support Group Forums - View Single Post - Help, cancer has spread from bones to my lungs

Jackie07 · 06-06-2014, 11:31 PM

Kristin,

Cancer Treatment of America is a 'chain store' - there's no comparison to the Mayo Clinic or MD Anderson. Even though it's still possible that they will recommend the same regiment as you've already been heavily treated, it's worth a try to contact the best cancer centers of the world. Remember it's a long process for a treatment to go on clinical trial. Anything that's been published is 'yesterday's news'. You want to get hold of the top-notch researchers to find the state-of-the art treatment.

How about our trusted Dr. Dennis Slamon at UCLA? The Father of Herceptin? AndiBB had gotten hold of him almost 10 years before Herceptin was formerly approved. He might have a better idea/picture as everyone in the field likely will consult him before conducting a new research on treating Her2.

With the birth of your son and your mother's passing, your whole family have been through tremendous stress the past few years since your diagnosis. Hang in there and good luck. I'm sending you good vibes.

06-06-2014, 11:31 PM	#25
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	Re: Help, cancer has spread from bones to my lungs Kristin, Cancer Treatment of America is a 'chain store' - there's no comparison to the Mayo Clinic or MD Anderson. Even though it's still possible that they will recommend the same regiment as you've already been heavily treated, it's worth a try to contact the best cancer centers of the world. Remember it's a long process for a treatment to go on clinical trial. Anything that's been published is 'yesterday's news'. You want to get hold of the top-notch researchers to find the state-of-the art treatment. How about our trusted Dr. Dennis Slamon at UCLA? The Father of Herceptin? AndiBB had gotten hold of him almost 10 years before Herceptin was formerly approved. He might have a better idea/picture as everyone in the field likely will consult him before conducting a new research on treating Her2. With the birth of your son and your mother's passing, your whole family have been through tremendous stress the past few years since your diagnosis. Hang in there and good luck. I'm sending you good vibes. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 06-06-2014 at 11:47 PM..