HER2 Support Group Forums - View Single Post - Seeking advice from Vaccine trial participants

europa · 03-03-2013, 05:09 PM

Hi there,
I'm about to get the GP2 + GM-CSF vaccine from Walter Reed. I have been waiting for this moment since I got diagnosed. The vaccine I'm getting has been given to hundreds of women and they are nearing the end of Phase 2 and will be entering Phase 3 soon. So I am not too concerned about the side effects. Actually, tomorrow I have to go in for them to test the vaccine on my thigh to see if I get a reaction. And the on Wednesday I have to stay at the hospital for 2 hours after getting the full vaccine so they can check me every 15 minutes for a reaction. From what I have read, there are a lot of vaccines that have some GM-CSF as part of their formula. So the risk of the bad effects you mention, I believe, are low. I think that the benefits outweigh the risks. Just my thought on it.

03-03-2013, 05:09 PM	#2
europa Senior Member Join Date: Jan 2012 Posts: 362	Re: Seeking advice from Vaccine trial participants Hi there, I'm about to get the GP2 + GM-CSF vaccine from Walter Reed. I have been waiting for this moment since I got diagnosed. The vaccine I'm getting has been given to hundreds of women and they are nearing the end of Phase 2 and will be entering Phase 3 soon. So I am not too concerned about the side effects. Actually, tomorrow I have to go in for them to test the vaccine on my thigh to see if I get a reaction. And the on Wednesday I have to stay at the hospital for 2 hours after getting the full vaccine so they can check me every 15 minutes for a reaction. From what I have read, there are a lot of vaccines that have some GM-CSF as part of their formula. So the risk of the bad effects you mention, I believe, are low. I think that the benefits outweigh the risks. Just my thought on it. __________________ DX 10/2011 PET Scan + MRI 10/2011 Lumpectomy 11/11/11 Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node) AC started 12/2011 ended 1/2012 Taxol + Herceptin weekly for 12 weeks ended 4/2012 30 zaps of radiation done 6/2012 Tamoxifen 6/2012 every 3 weeks of Herceptin for another year. Metformin Trial 8/12 10/12 MRI- CLEAR 01/13 BRAIN MRI- CLEAR! 01/13 Neck MRI- CLEAR! FINISHED HERCEPTIN 1/9/2013...Woot Woot Starting Walter Reed Vaccine Trial 2/13 CT Scans + ultrasound of abdomen CLEAR-5/13 02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging 12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner 12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system 1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy. 4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life. 7/27/2018 hysterectomy and oopherectomy 01/07/2019 Mastectomy and expanders put in 3/22/2019 Vtach, almost died. Cause unknown. 7/22/2019 New perky boobs put in 7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018. www.mychemobag.org www.facebook.com/mychemobag 8 YEARS NED