HER2 Support Group Forums - View Single Post - bladder dysfunction may be associated with herceptin use--anyone with symptoms?

Karen Wheel · 04-27-2011, 09:22 AM

Another good thing I found that worked (or at least helped!) when I was on Herceptin and actually even now almost a year out from Herceptin I still use this! But search at your local healthfood - Vitamin store (or search to order on-line) for a product called D-Mannose. I really had the best success with the powdered version of this from a company named Pure Encapsulations. It is a super good grade and it really does help a LOT! But it is a natural sugar that somehow helps the bladder. They use it for bladder infections as it helps attract the bacteria to the "sugar" and then you pee the bacteria out (in theory) but even though I wasn't actually having a bladder infection (just felt like it!) it did help with the bladder overall - so I am not sure what other healing properties it might have for the bladder in general. All I know is it was all that kept me sane when I was on the Herceptin.

Give it a try! Also .... I take (and took during treatment) a very high dose of Vitamin C which I believe that Vitamin C cures everything. It is a super immune booster and I think this also would really help you! I started with 2,000 - 3,000 mg (2-3 grams) a day and upped that slowly (as you have to build up over a week or two to higher doses or you end up with the runs!) but I now take 7 grams (7,000 mg) to 10,000 a day. I use a powdered concentrate that is like 5,000 mg for a smalll teaspoon full of powder and I put it in my fresh juice daily.

And.... I have not been sick since I started the vitamin C. Not a cold, a sore throat, cough, flu ... NOTHING ... And I am still NED too! I accredit this to the Vitamin C and my other supplements, but as strange as it sounds, I am more healthy (lots!) now than I was before I got cancer!

There is a bright side!
:-)
For more info please feel free to email me directly - "wheelistic@yahoo.com"
Karen

04-27-2011, 09:22 AM	#16
Karen Wheel Senior Member Join Date: Jul 2009 Location: Sardegna, Italy Posts: 362	Re: bladder dysfunction may be associated with herceptin use--anyone with symptoms? Another good thing I found that worked (or at least helped!) when I was on Herceptin and actually even now almost a year out from Herceptin I still use this! But search at your local healthfood - Vitamin store (or search to order on-line) for a product called D-Mannose. I really had the best success with the powdered version of this from a company named Pure Encapsulations. It is a super good grade and it really does help a LOT! But it is a natural sugar that somehow helps the bladder. They use it for bladder infections as it helps attract the bacteria to the "sugar" and then you pee the bacteria out (in theory) but even though I wasn't actually having a bladder infection (just felt like it!) it did help with the bladder overall - so I am not sure what other healing properties it might have for the bladder in general. All I know is it was all that kept me sane when I was on the Herceptin. Give it a try! Also .... I take (and took during treatment) a very high dose of Vitamin C which I believe that Vitamin C cures everything. It is a super immune booster and I think this also would really help you! I started with 2,000 - 3,000 mg (2-3 grams) a day and upped that slowly (as you have to build up over a week or two to higher doses or you end up with the runs!) but I now take 7 grams (7,000 mg) to 10,000 a day. I use a powdered concentrate that is like 5,000 mg for a smalll teaspoon full of powder and I put it in my fresh juice daily. And.... I have not been sick since I started the vitamin C. Not a cold, a sore throat, cough, flu ... NOTHING ... And I am still NED too! I accredit this to the Vitamin C and my other supplements, but as strange as it sounds, I am more healthy (lots!) now than I was before I got cancer! There is a bright side! :-) For more info please feel free to email me directly - "wheelistic@yahoo.com" Karen __________________ Karen Wheelhouse Age: 46 Facebook id: Karen Wheel 2-09 – Age 44 -Biopsy-Cancer 3-09 – Right Quadrantectomy. Clear margins. 3 lymph nodes taken - all clear Tumor results: Stage 1, 1.5 cm, Her2 +++ Est positive 80% - Prog 10% - Ki67 postive 30% 4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH! 4-09 Started Herceptin & Chemo (9 weeks of Navelbine ) FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer! 8-09 - 30 RADS 9-09 - Said NO to hormone therapy 4-10 Finished Herceptin!!!! 7-10 PET Scan & other exams .... All clear! YIPPEE!!!! 11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED! 2-25-2011 --- 2 years from surgery and NED!!!!!! 7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]