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Old 11-03-2006, 01:08 PM   #3
MichelleMoon
Senior Member
 
Join Date: Oct 2006
Location: Chicago
Posts: 36
Genetic testing and decisions

Seven years ago when I had genetic testing, counseling was a mandatory aspect of the process. If it isn't now, you should insist on a lengthy conversation with someone specializing in oncology genetics (I had my testing at Univ. of Chicago).

My 2 cents on preventative measure: I learned after my BC about my status. I opted not to pursue a prophylactic mastectomy on the other side, but I'm monitored very closely with MRIs and mamms. I felt the chance of catching it early in the breast was pretty good and didn't want another surgery, emotional drain, etc. I personally feel keeping the ovaries is much riskier. The testing methods aren't reliable. I am monitored with ultrasounds and CA-125 blood tests. I had full intention of yanking those things out (I'm finished with my family) when I turned 40. Low and behold on my 40th b-day I learned about my lung mets. So...I'm dealing with that for now.

Best of luck in your decisions,

Michelle
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