Thread: I'm scared
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Old 08-13-2006, 11:58 AM   #10
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Susan, of course you are shocked and scared right now - we have all been there. It sounds like your onc is wisely recommending treatment to match the aggressiveness of Her2+ disease. With treatment, the odds that you will beat this back for good without future recurrence are EXCELLENT. You want to be part of those stats.
Supporting you through chemo need not be a burden to your sister. It is not the nightmare scenario we have all heard about and feared as "worse than the disease". I had 6 rounds of chemo with the main side effect (besides the new haircut!) being mild fatigue over time. This may sound strange, but allowing your sister to be there and wrap you in her love can be a gift for both of you. My sister lives 2000 miles away and it was really painful for both of us that she couldn't be here. I'm distressed by your husband's reaction - how terrible that must have been for you.
Don't be afraid of the chemo. You can totally do it. Yes, there are can be side effects, but everyone is different and you may or may not suffer from those that concern you. Don't claim them until they happen - but if they do, know that they can be managed. Also, discussions around side effects are to share ideas on how to best deal with them. Most folks aren't questioning whether it was worth it or not - you're talking about saving your life, after all.
In the end, although you call it "doctors orders", the decision is yours. You will make the decision that is right for you. None of this is fair, but you are NOT alone.
Take care
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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