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Chelee · 08-05-2006, 04:49 PM

KathyA, I am sure I won't be any help to you but wanted you to know I really feel for you. This sure isn't a easy road we are all on. I was on the Herceptin, taxotere & carbpotin. What kind of allergic reactions did you have from the Carbo? I know it wrecked havoic on my liver levels. Plus I needed a Iron IV infusion. Taxotere was pretty nasty too as I am sure you know all to well.

I am so sorry that chemo regimen caused you so many serious problems. Its bad enough when your trying to fight this beast...then the drugs your on cause problems and have to be switched. Very frustrating to say the least. I had no idea taxotere could cause congestive heart failure...but I guess it should NOT surprise me since all these drugs can have serious side affects.

I haven't been on any of the other drugs you mentioned yet. But there are MANY women here that have and can answer your questions. You probably already know this...but did you have Neulasta by any chance when you started that Navelbene? Because Neulasta can sure cause some SERIOUS bone pain. I was just trying to think of anything for you so that it would ease your mind since that Navelbene was working for you.

At least they are going to try some smaller doses of it. That might do the trick. And many times the body does adjust to these drugs after a few times. I learned that the HARD way.

Hang in there!

I hope this works out for you. Wishing you all the best.

Sending you all my thoughts and prayers.

Chelee

08-05-2006, 04:49 PM	#2
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	KathyA, I am sure I won't be any help to you but wanted you to know I really feel for you. This sure isn't a easy road we are all on. I was on the Herceptin, taxotere & carbpotin. What kind of allergic reactions did you have from the Carbo? I know it wrecked havoic on my liver levels. Plus I needed a Iron IV infusion. Taxotere was pretty nasty too as I am sure you know all to well. I am so sorry that chemo regimen caused you so many serious problems. Its bad enough when your trying to fight this beast...then the drugs your on cause problems and have to be switched. Very frustrating to say the least. I had no idea taxotere could cause congestive heart failure...but I guess it should NOT surprise me since all these drugs can have serious side affects. I haven't been on any of the other drugs you mentioned yet. But there are MANY women here that have and can answer your questions. You probably already know this...but did you have Neulasta by any chance when you started that Navelbene? Because Neulasta can sure cause some SERIOUS bone pain. I was just trying to think of anything for you so that it would ease your mind since that Navelbene was working for you. At least they are going to try some smaller doses of it. That might do the trick. And many times the body does adjust to these drugs after a few times. I learned that the HARD way. Hang in there! I hope this works out for you. Wishing you all the best. Sending you all my thoughts and prayers. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.