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Dear Dace,
You don't have a better role model for IBC than Mary Ann (and Sandy...you should check out her posts).
This is a scarey time for you and it is very hard to concentrate on work and kids while you deal with this disease.
I have stage 4 (mets to the lungs) and 4 kids (who were 15, 13,12 and 5) when I was first diagnosed in 2001. I found if I was to beat this disease and watch my angels grow that I had to make fighting this disease my number 1 priority. so I quit my job and went to work researching every bit of information I could find. This site is a God-send. Getting second opinions from "the best" is a priority. Tending to your own mental health is an absolute requirement so you can put your primary focus where it belongs; being a loving mom to your 2 angel babies and staying with them for as long as you can.
Stay with us and let us know how you are making out.
love Kim from CT
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