Thread: Muga Scores?
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Old 07-20-2006, 06:53 PM   #6
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
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Your muga score

Sherry, your MUGA score (or ECHO if you have that) should be on the report. Ask your doctor what the number is. You are looking for the LVEF, or left ventricle ejection fraction. If your doctor said it is normal, that is good -go with that for now! But ask your doctor what the range is, and what the number is! Just be aware, the report may not show the number. If not, you should raise heck about it before next time.

My first 2 or 3 come back with no number on it, the report actually said "left ventricle ejection fraction is normal" or nothing at all related to it! This drove me nuts - maybe it's the accountant in me, or needing to feel that I had SOMETHING I could track!
The next time I went in (by now I know the tech) I asked him why the number wasn't on there, and he told me that the cardiologist who read it either didn't put it on the report, or that he (the tech) didn't get it. He said it is technically difficult to get on me because I have a left implant. So I told him well, the only reason I'm here is for the LVEF, so we're going to get it and its going to be easy! Boy was he sweating! Then he wrote all over the notes that he needed that to be on the report and lo and behold its there ever since.
My oncologist also called the hospital where I have it done and read them the riot act - he's sending all these Herceptin women over there for this test, he needs that to be reported out. No more problems with the reports!
As I said, normal is good - but you really can't track "normal"!
Take care
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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