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Chelee · 07-19-2006, 08:24 PM

Hi Yorkie, So far it seems like Sherry, Christy, Kimberly, myself and you ALL had to bring it up or we wouldn't of gotten one. So the protocol must be as I said in another post. "Whenever the PATIENT brings it up...is when the oncologist HAS to order one...until then...no worries". lol

Bev might have a good point. Once you have a few and they are good...they can space them out further apart. In fact...my first two ECHO's were in a good range...and this IS the FIRST time they went over the three months. So that might be a part of it in some cases.

Cathy, I am sure sorry to hear you have had problems with your heart...especially when you want to continue on herceptin. That is a big worry with me. I am always afraid my ECHO will go down and will be told I have to go off it for a while. I hope it never happens...but I can only imagine how you feel. I hope yours goes back up so you can get going again on the herceptin. Sending you warm & healing thoughts.

Chelee

07-19-2006, 08:24 PM	#12
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Hi Yorkie, So far it seems like Sherry, Christy, Kimberly, myself and you ALL had to bring it up or we wouldn't of gotten one. So the protocol must be as I said in another post. "Whenever the PATIENT brings it up...is when the oncologist HAS to order one...until then...no worries". lol Bev might have a good point. Once you have a few and they are good...they can space them out further apart. In fact...my first two ECHO's were in a good range...and this IS the FIRST time they went over the three months. So that might be a part of it in some cases. Cathy, I am sure sorry to hear you have had problems with your heart...especially when you want to continue on herceptin. That is a big worry with me. I am always afraid my ECHO will go down and will be told I have to go off it for a while. I hope it never happens...but I can only imagine how you feel. I hope yours goes back up so you can get going again on the herceptin. Sending you warm & healing thoughts. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.