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Another +++ here....I think you will find tons of people here that share the same "rare" diagnosis. Although my type of bc is different (and even rarer) the +++ decide much of the initial treatment. I did have surgery and radiation, but I believe that should be decided by the size of the tumor and if and how many lymph nodes are involved. Your sister should ask for copies of all pathology and test reports. Start a file. It's very good to have especially if she is going between doctors.
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