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Old 07-12-2006, 11:24 AM   #26
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Dear Sandy -

Having roomed with you twice in San Antonio, I know you a little better. You are a very practical person with that Northeast "no nonsense" type personality.

We all certainly appreciate your posting this tragedy as a warning, but we can't help but be shocked and feel sad for the sudden loss to the family. (I could barely put myself in your shoes as I have 2 very dear sisters, both younger and in good health.) {{{hugs}}}

Regarding the staph germs - this is why they pumped me full of $1,600 worth of antibiotics while I was in the hospital last month with my lumbar drain. One other thing. When the resident chief came to see me and saw I had an IV in my hand, he ordered the nurse to remove it and use my port.

Also why my GP was shaking his head and rolling his eyes when he heard about my recent stay in the hospital. He knows those risks. Fortunately, I gambled and won this time.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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