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Old 07-05-2006, 05:27 PM   #3
judiek
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Join Date: Sep 2005
Location: Maryland
Posts: 31
Hi Steph,

I was hoping that you would see this. The infection was UTI...rest of cultures are pending. I didn't think they needed to keep me overnight but they said with a fever of 102 they wanted to keep me. They treated me with levaquin. The fever is gone but my headache continues.

Thanks for your input...your story is amazing...I remember viewing your pictures when you were treated for the brain mets. I hope I will be back to report good news!

Warmly,

Judiek

History

Discovered lump Sept. 2002 (mammo didn’t pick it up).

Had 3 mammo’s in my 30's...not to sure mammo’s did me any good.

Dx Oct 2002-just turned 41.

IDC and pagets disease, stage 2B, grade 3/3, nottingham scale 9/9.

3cm, lumpectomy,clean margins.

er/pr-pos, her2 neg, 2/25 nodes..

Nov 2002-March 2003-FEC (5fu, epirubicin, cytoxen).

March 2003- started tamoxifen.

May 2003- finished rads (33tx).

June 2003-CT/PET Scan- clear.

Started 3 month check ups w/lab.

July 2003-Lost my brother.

Dec 2003-complete hysterectomy/lost my father 4 days later.

Jan 2004-extensive mets, both lungs & liver, pleural effusion(labs normal)stopped tamoxifen .

Feb 23, 2004-CLINICAL TRIAL AVASTIN/TAXOL.

April 27th, 2005-DONE WITH AVASTIN/TAXOL...PROGRESSION.

15 months on trial which made my 5 lung nodules disappear/started with 9 liver nodules...now have 4 left -Progression was small pleural effusion around lung, heart and some slightly enlarged nodes in chest and abdomen.

May 6,- Sept. 14th, 20005-ARIMIDEX...didn’t work.

Sept 14, Progression to lungs and liver again...looking for another trial.

Oct 5, 2005-Started another clinical trial...XELODA and TIPIFARNIB...CEA now 15.0

Dec 1, 2005-Progression to lungs and liver again...OFF XELODA/TIPIFARNIB trial .

Dec 27, 2005-Started NAVELBINE

Dec 29-31, 2005-Hospitalized to drain 2 liters off right lung lining.

Jan 10-15th, 2006-Hospitalized to drain 2 more liters and dangerously low counts/ Lost my MIL.

Jan 24, 2006-Last tx of NAVELBINE...symptoms worsening

Jan 31, 2006-Started GEMZAR @25% reduction. CEA is @37.0

March 16, 2006-Ct showed significant improvement in chest and liver! Tm’s coming down.

June 19, 2006-CEA @3.4 and CA27.29 is 15.8!!

WE NEED A CURE
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