[geraldine]

Hi Barbara,

I have had the good fortune to have been on Herceptin, since december 2003

I was dxd her2+++ 22/24 nodes in 2001.( Mastectomy left breast ) Secondary on the breast wall, same side 2003.

My onc. wanted me on Herceptin indefinately and that has been the case till now.

I might be coming off Herceptin, because, I was told, I am now in unchartered territory, ( I have told them to look at this forum for all the info they need ) they can't monitor me while on Herceptin. After 3 months off, they will give me all the checks, hopefully all will be well and I can get on with my life.
Should my cancer come back, I will go straight back onto Herceptin but I am still wary about coming off it.

Here in the UK, I am one of the lucky ones. If this had happened to me just one year earlier.... Well anyway...I'm here now and that's all that counts

God Bless to all
Geraldine x