HER2 Support Group Forums - View Single Post

StephN · 06-01-2006, 12:03 PM

Hi Maryanne -
Lola used the Caringbridge journal site and if she could not post, her hubby or someone else would.
Thanks for the update - but not the part about having 3 anomolies. Still and all you have ovecome IBC as you say and are of a mind to get through this.
Glad to have the specific info on how they go about the whole thing. This seems a little different than for Lola as she had her sister typed a match early on and all was ready for the marrow when the chemo had done its work. Sorry they want to play a waiting game with you. But you have some additional issuess at work here as you described. Thanks for your honesty, as we never know when it could be our turn. And at least we would know what questions to ask, if we felt sidestepped by the docs.

You may be interested to know that one of my husband's cousins was very instrumental in getting the marrow donor registry started in the eighties. Their son was here in Seattle being treated for Hodgkins AND Nonhodgkins lymphoma as a result of Agent Orange exposure. We watched him go through his transplant process with marrow donated from one of his sisters. It was an honor to have his first "outing" with us and do a small celebratory dinner at our house. This registry has done a lot of good for a lot of people and it is my fervent hope that you will also benefit.

Have a great weekend with your family and a lot of prayers will be coming your way on Monday as you enter the hospital.

06-01-2006, 12:03 PM	#92
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Caringbridge journals Hi Maryanne - Lola used the Caringbridge journal site and if she could not post, her hubby or someone else would. Thanks for the update - but not the part about having 3 anomolies. Still and all you have ovecome IBC as you say and are of a mind to get through this. Glad to have the specific info on how they go about the whole thing. This seems a little different than for Lola as she had her sister typed a match early on and all was ready for the marrow when the chemo had done its work. Sorry they want to play a waiting game with you. But you have some additional issuess at work here as you described. Thanks for your honesty, as we never know when it could be our turn. And at least we would know what questions to ask, if we felt sidestepped by the docs. You may be interested to know that one of my husband's cousins was very instrumental in getting the marrow donor registry started in the eighties. Their son was here in Seattle being treated for Hodgkins AND Nonhodgkins lymphoma as a result of Agent Orange exposure. We watched him go through his transplant process with marrow donated from one of his sisters. It was an honor to have his first "outing" with us and do a small celebratory dinner at our house. This registry has done a lot of good for a lot of people and it is my fervent hope that you will also benefit. Have a great weekend with your family and a lot of prayers will be coming your way on Monday as you enter the hospital.