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Sheila · 05-21-2006, 05:24 AM

Sherry

I have also walked in your shoes, probably more on this board than you would believe. I have added 20# in 2 1/2 years of stage IV....I know its there, I don't need my spouse to remind me! It is hard to live with uncertainty every day, especially when you don't get the support fom your loved ones and especially your spouse. I guess they forgot the FOR BETTER OR FOR WORSE, IN SICKNESS AND IN HEALTH facet of their vows. I get much support from my parents, and my sisters, and my children are grown, I try not to burden them. It is scary but I seem to get more support from the neighbors than my own spouse....I guess he thinks having cancer is like getting a cold, you'll get over it! I even bought a book for husbands on how to deal with their wive's breast cancer...it is sitting unopened for 2 years starting to get dusty!
I have taken control over my own life...I no longer feel guilty if I want to go somewhere and he doesn't...I GO! I live every day like it is my last, and savor every minute. In 3 weeks I am going to Key West with a girl friend to get away for 5 days....and I'm not looking back, I will put CANCER on the back burner and enjoy every minute. Life is to short....live each day, and if others dont want to be there for you, find people who do! You deserve it.

05-21-2006, 05:24 AM	#6
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Sherry I have also walked in your shoes, probably more on this board than you would believe. I have added 20# in 2 1/2 years of stage IV....I know its there, I don't need my spouse to remind me! It is hard to live with uncertainty every day, especially when you don't get the support fom your loved ones and especially your spouse. I guess they forgot the FOR BETTER OR FOR WORSE, IN SICKNESS AND IN HEALTH facet of their vows. I get much support from my parents, and my sisters, and my children are grown, I try not to burden them. It is scary but I seem to get more support from the neighbors than my own spouse....I guess he thinks having cancer is like getting a cold, you'll get over it! I even bought a book for husbands on how to deal with their wive's breast cancer...it is sitting unopened for 2 years starting to get dusty! I have taken control over my own life...I no longer feel guilty if I want to go somewhere and he doesn't...I GO! I live every day like it is my last, and savor every minute. In 3 weeks I am going to Key West with a girl friend to get away for 5 days....and I'm not looking back, I will put CANCER on the back burner and enjoy every minute. Life is to short....live each day, and if others dont want to be there for you, find people who do! You deserve it. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin