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RhondaH · 04-07-2006, 04:14 PM

The lady I do Herceptin with has been on Xeloda and Herceptin for 3 years due to a recurrence to her sub clavicle (I believe) she was originally Stage 2 and recurred 5 mo after finishing chemo. She says that she has been NED all this time and that our onc has just kept her on it to keep the disease at bay. She is just NOW looking at going off of the Xeloda (due to cracked hands and feet) and I was curious, those of you that are or were on Xeloda, what was the longest your onc kept you on it once you reached NED? As I've mentioned before, he's VERY aggressive, I asked our onc nurse yesterday about an ECHO (as I only had 1 prior to starting Herceptin 8/15/05 and no others) and she said he doesn't do follow up ECHO's unless there is a concern (I've only got 6 more treatments until I'm done, so it doesn't matter at this point).

Rhonda

04-07-2006, 04:14 PM	#1
RhondaH Senior Member Join Date: Sep 2005 Location: Grand Rapids, MI Posts: 1,516	Xeloda ? The lady I do Herceptin with has been on Xeloda and Herceptin for 3 years due to a recurrence to her sub clavicle (I believe) she was originally Stage 2 and recurred 5 mo after finishing chemo. She says that she has been NED all this time and that our onc has just kept her on it to keep the disease at bay. She is just NOW looking at going off of the Xeloda (due to cracked hands and feet) and I was curious, those of you that are or were on Xeloda, what was the longest your onc kept you on it once you reached NED? As I've mentioned before, he's VERY aggressive, I asked our onc nurse yesterday about an ECHO (as I only had 1 prior to starting Herceptin 8/15/05 and no others) and she said he doesn't do follow up ECHO's unless there is a concern (I've only got 6 more treatments until I'm done, so it doesn't matter at this point). Rhonda