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Dear Tricia, Your words were very inspiring to me - You are a role model to me on how you can fight this disease and not accept that its over - This site has given me so much hope that I can live to the age 40 and hopefully beyond - My daughter was lying in bed with me last night and we were talking about what she would like to do when she grows up and how she would like me to come and live with her in her big house that she dreams of having in her adulthood and for the first time I said yes it would be marvelous instead of trying to avoid talking about things relating to when she is older - I have so much hope now and thank you so much.
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