HER2 Support Group Forums - View Single Post

StephN · 03-12-2006, 11:29 AM

Hi -
From my experience - once you have no measurable disease or are pronounced NED they do not give chemo. We are lucky to get the Herceptin and anything else.
Have you gotten the HER2 serum assay? This is another way to keep track of your cancer through blood draws. See posts above under "Dr. Carney."

Glad you are doing fine now. Don't listen to those stats as they are OLD and we are writing NEW stats with Herceptin and the other new drugs like hormone suppressors. Stay NED as long as you want to. That is what I am trying to do!

I have been off chemo for over 3.5 years now and had severe liver mets.

03-12-2006, 11:29 AM	#2
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	No measurable disease Hi - From my experience - once you have no measurable disease or are pronounced NED they do not give chemo. We are lucky to get the Herceptin and anything else. Have you gotten the HER2 serum assay? This is another way to keep track of your cancer through blood draws. See posts above under "Dr. Carney." Glad you are doing fine now. Don't listen to those stats as they are OLD and we are writing NEW stats with Herceptin and the other new drugs like hormone suppressors. Stay NED as long as you want to. That is what I am trying to do! I have been off chemo for over 3.5 years now and had severe liver mets.