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I know Alaska Angel from my attempts to try to get something like this going. It is taking me a while to navigate this information and I am new to these message boards or whatever they're called. And I never thought of myself as a techonerd!
I would certainly volunteer for a trial for herceptin in this scenario. I'd even consider herceptin and chemo.
I am 2 1/2 years after chemo, ER and PR negative and this is the only straw I have.
I have heard of a oncologist who is interested in such a trial, but he also has advised he can't get the funding.
I am not surprised. The pharmaceutical companies are unlikely to be interested in a trial on a group whose number is declining. Let's face it as the clock ticks so does the likelihood of us developing mets and then we'll get it anyway. And there are no new members of the club as newly diagnosed patients will get it.
Has anyone every tried lobbying Genentech?
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