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Joannie,
Thank you for your reply. I too will continue to seek other opinions. I do think that we fall into the "we don't know" category. Hence, the more cautious physicians will follow the guidelines. (Call me cynical, but from a liability perspective they can't go wrong if they follow the standard of care approach.) However, I think there is a sense out there that those of us in this situation may well benefit from Herceptin nothwithstanding that there is no data one way or the other on the topic. So I think it comes down to a judgment call on our parts. I am continuing to investigate options and will make a decision when I feel I have enough information available to me. (However, since I went for the vaccine trial early on, I tend to be the guinea pig type so I have a feeling I know how I will come out on this issue.) I have a 3 year old daughter who motivates me to do everything in my power to beat back the cancer and to remain NED. I know we all have our motivators.
Best of luck to you.
Cynthia
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