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01-19-2005, 07:10 AM

Julie-

I had a 4 cm lump at diagnosis. I also had indications through physical exam and PET scan at original diagnosis that supraclavicular nodes and lymph nodes were involved. I had neo-adjuvant chemo of cytoxin/epirubicin/taxotere for six cycles every 21 days. Tumor and nodes responded extremely well, resulting in lumpectomy. Also had SNB, which was negative. Two further cycles of CET occurred, and then I had radiation. During radiation I also did 3 months of Herceptin/Navelbine. I had a reoccurrence at lymph nodes nine months later, and had them surgically removed. Scans, etc. show no further spread.

I was never told that supraclavicular involvement guaranteed tumor elsewhere - in fact, part of the reason the Stage 3C was developed was to acknowledge that treatment could result in sustained NED. Good luck and try to stay positive...

01-19-2005, 07:10 AM	#10
Shell Guest Posts: n/a	Julie- I had a 4 cm lump at diagnosis. I also had indications through physical exam and PET scan at original diagnosis that supraclavicular nodes and lymph nodes were involved. I had neo-adjuvant chemo of cytoxin/epirubicin/taxotere for six cycles every 21 days. Tumor and nodes responded extremely well, resulting in lumpectomy. Also had SNB, which was negative. Two further cycles of CET occurred, and then I had radiation. During radiation I also did 3 months of Herceptin/Navelbine. I had a reoccurrence at lymph nodes nine months later, and had them surgically removed. Scans, etc. show no further spread. I was never told that supraclavicular involvement guaranteed tumor elsewhere - in fact, part of the reason the Stage 3C was developed was to acknowledge that treatment could result in sustained NED. Good luck and try to stay positive...