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Old 12-28-2004, 04:12 PM   #4
Barbara
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Julie:

I am Stage 2B and I am receiving Herceptin off label for a year. Before I finished my taxol treatments I brought up my desire to try Herceptin reminding my oncologist that I had asked him about getting into a Herceptin trial at my first visit (he did not help me pursue a trial at that time). After bugging him twice his office called my insurance company and they agreed to cover the Treatment which surprised me as I belong to a HMO and live in Arizona If my insurance had not covered it my Oncologist had talked the drug rep into providing the Herceptin at no cost with me paying only the infusion costs.

If your oncologist refuses to give you Herceptin ask him about a local trial and/or if he knows a fellow oncologist that is willing to provide Herceptin off label. Sometimes just thinking they will lose business will prompt the oncologist to step outside their box.

Have you gone into any of the trials registries? Unfortunatley, most of the trials want the patient from their first chemo on.

I wish you the best of luck. Barbara
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