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Linda, I agree with Steph...it's you're life. Do people REALLY feel that they can give up on a treatment that seems right for them for the sake of research. I know there has been mention of this earlier..about not pulling out of a trial because of the potential research outcome. I can't imagine why someone would not put their life and family's life before the "research". It's perplexing...I guess I would have to be in that situation.
Good luck with your decision.
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