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Old 01-18-2016, 09:22 PM   #10
Mtngrl
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Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Weekly Taxol for Stage IV

Tracy,

I'm so sorry this is such a slog for you. I was on weekly Taxol for three months. It was my first 3 months of treatment, and I was in a daze. But I started doing guided imagery almost as soon as I was diagnosed, and I did a lot of knitting.

I am not consistent about engaging in practices that I know to be helpful in addressing anxiety and fear, but even though I'm not "good" at it, I have found these things to be helpful:

--Mindfulness. Even for just a moment, slow down, take a deep breath, follow the breath, do a body scan. Note how your body feels. Take that state of relaxed awareness of what is going on right now with you into your day as often as you think of it. See. Smell. Taste. Listen. Be here now.

--Guided imagery. I was recently introduced to yoga nidra, and I love it. It's like a little vacation. I also have guided imagery products from a group called Health Journeys on cancer, relaxation, and also trauma.

--Creativity. Do whatever you can really get lost in, just for its own sake. For about six months I spent a lot of time coloring mandalas. I don't know why, but I found it soothing.

--Touch. (I live alone and have no pets, so I really fall short here.) Hugs, snuggles, massage. Petting a dog or cat. Holding hands.

--Denial. I had an uncle who was a survivor of the Bataan Death March. He said that in prison camp he started an "I like it here" club. He said not too many people wanted to join. But one of his survival strategies was straight-up, flat-out denial. For a fantastic example of this kind of technique, see the movie "Life is Beautiful."

--Journaling. When I'm anxious there's usually something underneath. I do free writing, exploring what I'm feeling, describing it as accurately and immediately as possible, and resisting the urge to react, interpret, or evaluate. I usually don't feel like it's helping, but often look back later and realize that it did.

--Talk yourself down when you're feeling panicky. Take five to ten slow, deep breaths. You might do a "breath prayer" with it, repeating one phrase on the inhale and one on the exhale. Something like, "Breathe in light, breathe out darkness." Or, "there is/ no tiger." Or you could visualize a stop sign. Or imagine you're a little girl in the lap of a safe, loving, trustworthy adult who's giving you encouragement and holding you close.

--I am never anxious when singing or knitting. I have knitted a whole lot of things since my diagnosis. Plus I'm creating artifacts of my presence on the planet.

--Dance. Dance fast to a strong beat until you're sweaty and out of breath. Or put on something soulful and use your body to express your feelings.

--Read whatever you classify as "escape fiction." Watch funny or romantic movies, or action movies, whatever makes you forget who you are while you're attending to it.

As for my opening remark about not being good at these practices. I think that's part of the practice. I do the best I can. I don't drown myself in recriminations when I forget to do them or backslide or whatever. I'm trying to learn to love myself and love my life the way I am/the way it is. I can't build on weakness, so I try to notice strength and build on that. Like the instruction for meditation that if you notice your mind wandering you "gently" bring your attention back, I try to be gentle with myself.
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Amy
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4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb

Last edited by Mtngrl; 01-19-2016 at 10:31 PM.. Reason: To correct spelling of the movie title.
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