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agness · 01-13-2016, 08:02 AM

I read through your sig and I think, damn. But I too am amazed by how you have been fighting HER2 for so long and are still winning. I'm sorry it hasn't gone away but look at how amazing you are. You can feel weak and low but count me amongst your fans and let me give you virtual hugs and tissues when you are feeling low.

Let's talk about your gut though, have you ever heard of such a thing as resistant starch? It is a type of carbohydrate that your body doesn't digest but the beneficial flora in your gut can digest it and it is totally good for you. What is even more crazy is that it costs pennies and yet docs don't know about it.

The thing is that it can totally help with diarrhea, something that many suffer with during chemo. Supplementing with a probiotic and probiotic foods is important as well since chemo messes with your microbiota in ways that are 1000 times worse than antibiotics.

I'll post more separately about resistant starch but here are a few easy options:

1 tsp potato starch mixed with cold water
--or--
1/2 cup potato or pasta salad (must be cold, however you like it)
-- or--
1/2 cold boiled potato

Potential beneficial effects of butyrate in intestinal and extraintestinal diseases
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3070119/

01-13-2016, 08:02 AM	#7
agness Senior Member Join Date: Aug 2014 Location: Seattle, WA Posts: 285	Re: Radiation 5 zaptrons tomorrow I read through your sig and I think, damn. But I too am amazed by how you have been fighting HER2 for so long and are still winning. I'm sorry it hasn't gone away but look at how amazing you are. You can feel weak and low but count me amongst your fans and let me give you virtual hugs and tissues when you are feeling low. Let's talk about your gut though, have you ever heard of such a thing as resistant starch? It is a type of carbohydrate that your body doesn't digest but the beneficial flora in your gut can digest it and it is totally good for you. What is even more crazy is that it costs pennies and yet docs don't know about it. The thing is that it can totally help with diarrhea, something that many suffer with during chemo. Supplementing with a probiotic and probiotic foods is important as well since chemo messes with your microbiota in ways that are 1000 times worse than antibiotics. I'll post more separately about resistant starch but here are a few easy options: 1 tsp potato starch mixed with cold water --or-- 1/2 cup potato or pasta salad (must be cold, however you like it) -- or-- 1/2 cold boiled potato Potential beneficial effects of butyrate in intestinal and extraintestinal diseases http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3070119/ __________________ Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall. Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy. 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED. 10/27/15 atypical uptake in right cerebellum - inflammation? 12/1/15 Leptomeningeal dx. Starting IT Herceptin. 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly 3/2016 - stable scan 5/2016 stable scan 7/2016 pseudoprogression? 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT 11/2016 Cyberknife to temporal lobe, HBOT just prior 12/2016 - lesions starting to show shrinkage 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone. Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing. Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.