Re: Don't want to give up TDM-1
Hi sisters,
I finally got an appointment for T-DM1 treatment still from Humber this coming Wed. (It was approve recently for me again!) My second opinion appointment to see a breast oncologist at Sunnybrook Hospital has been scheduled for mid September, even after I called countless people at the hospital to tell them my case was urgent.
I have developed many skin rash/blister during this waiting time, many have cracked open in the past week and they continue to get worse everyday. I can not handle the pain from the swollen and bleeding skin sores. I am using a hydromorphone pain pump to manage the pain. Currently, my left arm/hand are swollen, right hand also started to swell. Countless skin sores are running down the sides of my torso and slowly migrating to my back.
With that being said, I still have hope and will continue pushing for treatment! Has anyone have experience with swelling and blisters that were mitigated with T-DM1?
Thank you for all your responses, they give me strength to keep fighting everyday.
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