View Single Post
Old 02-12-2015, 12:58 PM   #43
rhondalea
Senior Member
 
rhondalea's Avatar
 
Join Date: Jun 2011
Location: Somerset, NJ
Posts: 487
Re: Cognitive Rehabilitation

Hi Loren,

My SLP knew nothing about chemobrain, but she was willing to give it the old college try. The other day, she tried something she'd never done before with a patient, and to her amazement, it worked. IOW, it's a growth opportunity for the right person.

I will be grateful to my neuropsych forever that she identified my need for speech.

Please don't do Lumosity. At least not for now. Your brain needs rest, and Lumosity is the exact opposite of rest. Meditation would be better. With that said, my neuropsych did recommend a couple of the games at our final session, although I can't remember why. I'll see if I can figure out for you which ones they are.

I don't think it's Herceptin. I'm dogged in my conviction that benzyl alcohol is the culprit. Ask if they can mix it with water instead. Their ability to do so will depend on whether they have other patients receiving Herceptin the same day.

Finally, don't be too focused on finding a neuropsych who has worked with chemobrain. You'll probably be the first. You just need someone who has experience with TBI. She has to be willing to adapt a bit, but the symptoms (except for physical damage) are the same.

If worst comes to worst, the neurologist should at least be able to give you the names of some neurocognitive psychologists if the links I posted don't pan out.

And please keep me posted about progress.
__________________

2/6/09 Core needle biopsy: negative; Mammos through 2010: no change
3/30/11 Pea-sized lump in left breast at site of prior biopsy; mammo negative, sonogram not so much
4/14/11 Core needle biopsy: negative for cancer
5/18/11 Excisional biopsy 1.2 cm tumor, LVI, positive margin; ER+60%,PR+20%,HER2/CEP17 5
6/15/11 BMX: Left DCIS & LH; Right ADH; SNB: 2/3 nodes: 1.4 cm and 1 mm; ALND L1&2: 0/10; Stage IIa, Grade 3
7/14/11 CT/Bone scans NED; MUGA 66%
7/19/11 Biweekly dd AC w/Neulasta; done 8/30/11
9/13/11 Transfusion (Hemoglobin 8.6); MUGA 64%
9/20/11 Start Taxol + Herceptin; Taxol done 12/6/2011; continue Herceptin until 9/4/2012
12/27/11 Radiation - 6 weeks; 2/27/2012 - DONE! Yayyyy!
2/29/12 Start Tamoxifen 20 mg/day; continue until 2/28/17
5/16/12 Start five-years Metformin trial
6/19/12 MUGA 61%
8/21/12 Brain MRI NED (head still hurts, brain still fogged)
9/4/12 Herceptin done!
9/6/12 Port out!
7/11/13 Aricept 5mg for cognitive impairment; increased to 10mg as of 8/23/13; back to 5mg 12/2013
5/2014 Add Namenda 7mg
9/2014 Stop Aricept and Namenda; Neuropsychological evaluation
10/24/14 Start cognitive rehabilitation therapy
rhondalea is offline   Reply With Quote