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Re: ER-/PR- HER2+ Recurrence Period
I was also diagnosed ER-/PR- HER2+++. After initial treatment in 2006 I was in remission until early 2010; about 3 1/2 years. I had a chest wall recurrence, small and caught early by regular CT scans my oncologist recommended. I had surgery and radiation again and have been on Herceptin for almost 5 years now. My onc and I are talking about adding Perjeta to further protect from another recurrence. I would say that you are probably at a higher risk for recurrence, however, it may not happen. I would say continue having regular scans and stay on top of it. It is a little nerve wracking but there are lots of options out there today and more coming so live your life to the fullest. If it happens, it happens. I have been in remission now for almost 5 years and living a very normal life. I have Herceptin infusions every 3 weeks and the side effects are very manageable.
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Diagnosed June, 2006 HER2+++, ER- PR-, Grade 3, Stage IIB. Modified radical mastectomy, radiation, chemo, Herceptin, Tykerb 1 year. [*]In remission until 2/2010. Small tumor detected on chest wall during routine scan. 2/2010 surgery to remove tumor, started Herceptin/Tykerb, follow up radiation. [*]12/26/2010 - Off Tykerb due to allergic reaction[*]12/16/2014 - Have continued on Herception for almost 5 years now and remain NED. Discussion with onc re adding Perjeta to the Herceptin as another way of preventing recurrence. Still in discussion phase. 12/26/14 Onc applying for approval for Perjeta.
Perjeta approved and I received one infusion. It had an immediate impact to my lungs and I experienced difficulty breathing so.....I'm going to be sticking with just Herceptin. Still looking for a good vaccine program to enroll in.
Debbie K
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