View Single Post
Old 06-19-2014, 08:57 AM   #3
Nurse4u2day
Senior Member
 
Nurse4u2day's Avatar
 
Join Date: Feb 2014
Location: California
Posts: 439
Re: Double mastectomy tomorrow...starting to stress :(

Crb,
I agree with Suzanne in the sense that some times these doctors mis speak and it makes us nervous. Prior to my surgery my plastic surgeons PA said to me after phase 1 of this reconstruction ( ie expanders) phase 2 will be easy! I looked at him and said what do you mean by phase 2 ? He said when we do your exchange for implants. I said ummm No DR. Bates at Stanford is doing the Diep.
So yes they do get mixed up. And you will meet with all the Doctors in pre op and ask ask ask all questions . As for doing the double mastectomy I'm not going to lie after I woke up it wasn't to bad but 4 hours later they tried to sit me up and it was the worse pain of my life, I was in sobbing tears. They then set me up on a morphine drip and I was fine. I am post mastectomy 8 days and although still on some pain Meds I am doing much better. My left breast had a small 8 mm cancer left and the good breast right no cancer. I am very happy I did both. Any questions feel free to message me.
Tammy
__________________
]11/13 Dx IDC left breast
11/19/2013 Inflammatory Breast Cancer stage 3c grade 2 Er- Pr- her2+++
Node involvement suspected based on CT
12/13 port placed
12/13 neoadjuvant DD AC xs 4 rounds started
02/14 taxol/herceptin started every week xs 12 rounds
Herceptin for 1 year
Ki67=23%
BRCA1&2 negative
5/06/14 last round taxol/herceptin. Chemo done!!!
5/07/14 clear CT scan
6/11/14 Bilateral Mastectomy Done
6/15/14 8mm tumor post chemo. Removed by bmx
6/15/14 lymph nodes 0/9
6/15/14 officially Cancer Free
7/11/14 emergency surgery to left breast . Wound refused to heal and broke open. New TE placed
7/28/14 emergency medical procedure now to right breast( post op 6 weeks mastectomy ) wound opens.
8/25/14 - 10/07/14 Radiation
11/24/14 CT of Brain clear
01/23/15 One year Herceptin Complete
02/04/15 Diep done
5/01/15 1 year Ct scan- mass in thymus
6/23/15 repeat CT mass in thymus still present
6/30/15 biopsy thymus 7/03/15 mass Benign! Diagnoses Thymic hyperplasia rebound ( chemo at fault, no long term health effects)
7/08/15 phase 2 diep
11/23/15 phase 2b ( reconstructive surgery with lipo)
03/05/18 Vinnie Myer 3 D nipple tattoos complete.
11/19/2018 5 years since Dx of IBC stage 3c remain NED.
11/19/21- 8 years today I officially remain NED and in 12 days I will be having a lymphnode transfer to help decrease some mild lymphedema! Still working, living life and soon to see a day I thought never would happen and that’s becoming a grandparent June 22nd.
11/19/2023 - 10 years since diagnosis and I remain NED
Nurse4u2day is offline   Reply With Quote