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Old 03-29-2014, 02:09 PM   #5
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Join Date: May 2010
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Question Re: halaven/herceptin/tykerb-anyone?

I am on halaven and tykerb since 12/5/13. It has been relatively easy. I haven't had side effects from tykerb and the halaven is not all consuming. It is a quick 2-5 min IV injection after decadron and zofran. The day after I'm ok with just a decadron flush (I kinda look like a beet!) Day 2 is the hardest day when I feel fluish. I call it chemover because it's like a hangover. I'm very tired and don't feel like eating but able to function. I just don't want to. Day 3 is a mild version of the day before and better or gone by day 5. Through all of it I can take care of my to dos, family, elderly parents etc. I do indulge myself more on day 2 tho. I didn't lose all my hair but it did thin. I was blessed with thick hair so I've been able to go w/o head coverings. My bald spots from cyber knife grew back while on it so if you're bald now you may actually see hair grow. I understand some people do lose tho. Eat nutritious best you can and hydrate, it helps. I'll be having a CT a week from Monday and I'll know better how it's doing.
I have talked to my onc about all I've already done and he has said there are lots of things out there, they continue to come up w new things and reassured me we're not running out. Hang in there I don't know your whole situation but I truly hope this new combo does it for you. Lots of hugs, cathy
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3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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