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Re: Hi I'm new
Thanks Debbie
Yup I do take deca as part of the premeds. I really don't know it's the herceptin, I just assumed. I do have a bp monitor at home so I'll track it this week. I just had an infusion on Friday (just taxol) so I'll follow it. Thanks for the idea.
I was thinking of asking the doc to reduce the deca anyways, I typically can't sleep until about 4 am the day of infusion. What is the downside of reducing it?
Thanks for the help!
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2009: dcis rt side, mastectomy, no chem or rads
2009: rt recon implant.
Jan 2014: stage 4. pain right side, found "too many to individually account for" liver mets. Found right axilla lymph nodes and nearby mass (source). Lung, lymph and bone mets. Brain clear by MRI. Er and pr neg, HER2 +++
Feb 2014: herceptin, perjeta, taxol
July 2014: no active disease, only bone scars and 1 liver scar! Tumor markers all normal again.
Dec 2014: seizure, 3 brain mets (15, 5 and 3 mm)
Feb 2015: Linac Stereotactic Radiation for brain mets
June 2015: no new brain mets, old ones greatly reduced in size. Bod still no active disease
October 2015: New brain Met, zapped by Stereotactic rads, watching another spot
Jan 2016: The other spot grew, zapped again. Still on herceptin and perjeta every 3 weeks
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