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Old 03-01-2014, 10:10 PM   #1
linn65
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Join Date: Dec 2012
Location: Attica, IN
Posts: 371
Tamoxifen vs AI clarity....

I went for my 2nd opinion whether to take the arimidex prescribed by onc after hormone testing...she said it was a useless endeavor for someone like me. I was pre- menopause when starting. And since chemo and tamox for a year those tests would show post-menapause, and I would need to be off tamox for at least 6 weeks to even get a blood test to show that. Also, the AI would cause more harm than good because it would stimulate my brain to mAke more hormones to make my ovaries wake up. Back on tamox for the rest of 5 years.

2nd a trial is being done called SOFT in removing your ovaries she said they will have those answers in June or December if that would make a difference and right now they simply don't know that answer.

My feet and hands.....my joints want estrogen and that causes pain in hands and feet. Adding a new vitamin called glucosamine hci and some people it helps and some it doesn't. I should know in 30 days. If it does nothing don't take it.

Dr. Kathy Miller was a wealth of Info and explained in detail tamox vs an AI for me. I am thankful for the referral from this board.....

Now just between adding the vitamin D and the glucosamine hopefully it makes a big difference in hands and ankles/feet....it's strange how my ankles, wrists and even neck pop now....I am like the tin man in the Wizard of Oz and need to be oiled up.
__________________
myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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