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Cannon · 12-10-2013, 08:11 AM

Thanks Paty & Aussie Girl for the good wishes.

The Humira is definitely helping with the Crohn's, but as my GI said, the longer you've been sick, and the sicker you've been, the longer it takes to heal. So I am trying to think of myself as in a long slow recovery from all the bits & pieces. The big change has been in absorption - my hemaglobin, which has been a struggle to keep above 10, is now 12.6! Haven't had that since I started menstruating!

I also found out last week that my cardiomyopathy, which had been severe (15 ejection fraction) and returned to near normal (50 in May) is back down to 35. WTF? I didn't know it could go down again. But as I always like to say, at least I am here to have these problems.

Paty, is your colitis considered IBS or ulcerative colitis? Either way, you should be feeling better, keep pushing. Have you considered going gluten-free? My GI recommends it for IBS, even if no celiac disease present.

Best to you all,

12-10-2013, 08:11 AM	#4
Cannon Senior Member Join Date: Oct 2007 Posts: 203	Re: Checking In Thanks Paty & Aussie Girl for the good wishes. The Humira is definitely helping with the Crohn's, but as my GI said, the longer you've been sick, and the sicker you've been, the longer it takes to heal. So I am trying to think of myself as in a long slow recovery from all the bits & pieces. The big change has been in absorption - my hemaglobin, which has been a struggle to keep above 10, is now 12.6! Haven't had that since I started menstruating! I also found out last week that my cardiomyopathy, which had been severe (15 ejection fraction) and returned to near normal (50 in May) is back down to 35. WTF? I didn't know it could go down again. But as I always like to say, at least I am here to have these problems. Paty, is your colitis considered IBS or ulcerative colitis? Either way, you should be feeling better, keep pushing. Have you considered going gluten-free? My GI recommends it for IBS, even if no celiac disease present. Best to you all, __________________ Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++ Neoadjuvant A/C 4X Dose Dense 11/06 Bilateral Mastectomy (no choice on the right, my choice on the left) Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07 33 Rads Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier) Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause BRCA negative - lots of cancer in my family survivor of thyroid cancer also have Crohn's disease CT and bone scan say NED as of 5/13 dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35 1/13 Acute pancreatitis - are you kidding me? 9/13 started Humira for Crohn's. starting to have some energy again B12 and Vit D both needed supplementation Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years? 4/14 Kidney stones/blockage/infection - related to Crohn's Disease 5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year 6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.