HER2 Support Group Forums - View Single Post - Tumor Profiling

mamacze · 11-26-2013, 06:02 AM

How nice to hear from you Angel! I thought about you just 2 weeks ago - we were in NYC visiting my son (at NYU…a freshman!) and daughter (Waverly Street) - we stopped by the 9/01/01 memorial and I said a prayer for you.
I am so glad you had your tumor profiled. So interesting that Afinitor is a promising drug for you too - I wonder if you had the same mutation as me (a pi3K?). My oncologist says the mutation is a result of cancer being an inherently unstable cell structure and that it is not the type of mutation that we could pass onto our kids.
Good luck with your PET on Wednesday - Lord knows you are due for a good long break.
Have a wonderful Thanksgiving holiday (are you celebrating Hanukkah too?) I am expecting a wonderful surprise of 20 out of town family members (and of course a to-do list to choke a horse) - please stay well my friend - I will be meditating for you on Wednesday….XO

11-26-2013, 06:02 AM	#28
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Re: Tumor Profiling - I have to share with you How nice to hear from you Angel! I thought about you just 2 weeks ago - we were in NYC visiting my son (at NYU…a freshman!) and daughter (Waverly Street) - we stopped by the 9/01/01 memorial and I said a prayer for you. I am so glad you had your tumor profiled. So interesting that Afinitor is a promising drug for you too - I wonder if you had the same mutation as me (a pi3K?). My oncologist says the mutation is a result of cancer being an inherently unstable cell structure and that it is not the type of mutation that we could pass onto our kids. Good luck with your PET on Wednesday - Lord knows you are due for a good long break. Have a wonderful Thanksgiving holiday (are you celebrating Hanukkah too?) I am expecting a wonderful surprise of 20 out of town family members (and of course a to-do list to choke a horse) - please stay well my friend - I will be meditating for you on Wednesday….XO __________________ 2001 - Stage 0, lumpectomy, radiation, tamoxifen 2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only. 2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle 2011 - Still Herceptin only and NED 2011, June - STOPPED Herceptin and kicked up my heels! 2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable. 2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only Received U of W vaccine clinical "booster" Vaccine 2022 On Herceptin and NED continues - WOOT WOOT!