HER2 Support Group Forums - View Single Post - Tsh low -- what does it mean?

Andrea Barnett Budin · 11-06-2013, 08:03 PM

I love shrimp and lobster, clams and scallops.

No salad. Feh.

What does kelp do for you?

NO, 'LIZBETH, I never took iodine. Endo doc lady "thought" it was in my supplement and that is why TSH dropped. She was wrong. She didn't like that I told her she was mistaken. She insisted she had it in her notes. But she was so flustered by my obstinence re having another scan, which she has been literally pushing ev 3 mnths...

She said, I don't understand, you are so diligent about the rest of your body, why...

I said (Oct.) -- with hand gestures -- BECAUSE THERE'S A LINE. I JUST HAD A MESENTERY MASS AND HAD SURGERY IN JUNE AND IT WAS BENIGN. (Because they found something new in my CT scans.) I just had a core needle biopsy in my right breast, my only breast, b/c they found something new in August. And that was benign. And then I had a corneal abrasion that blinded me with pain for 5 days (b/c of an accident with one of my dog's paws). I am shaken. Feeling vulnerable. Need to calm myself. Can't be jumping from one medical emergency to another... Just not ready.

I asked the doc about my sluggishness (I take b-12 and tyrosine and a batch of other energy boosters daily) and asked about iodine. She insisted that, No, I am hyperthyroid, NO IODINE. She was adamant.

I think I read that a low TISH can be confusing and in fact be a sign of hypothyroidism cause the body is confused... Lord knows I'm confused.

No one has ever checked my iodine, unless -- I will check back w/my records when we had a wonderful female endo lady who moved away. I so trusted her, as did Paul. In fact, we were both in love with her...

Get back to you on that...

Andi

11-06-2013, 08:03 PM	#14
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Tsh low -- what does it mean? I love shrimp and lobster, clams and scallops. No salad. Feh. What does kelp do for you? NO, 'LIZBETH, I never took iodine. Endo doc lady "thought" it was in my supplement and that is why TSH dropped. She was wrong. She didn't like that I told her she was mistaken. She insisted she had it in her notes. But she was so flustered by my obstinence re having another scan, which she has been literally pushing ev 3 mnths... She said, I don't understand, you are so diligent about the rest of your body, why... I said (Oct.) -- with hand gestures -- BECAUSE THERE'S A LINE. I JUST HAD A MESENTERY MASS AND HAD SURGERY IN JUNE AND IT WAS BENIGN. (Because they found something new in my CT scans.) I just had a core needle biopsy in my right breast, my only breast, b/c they found something new in August. And that was benign. And then I had a corneal abrasion that blinded me with pain for 5 days (b/c of an accident with one of my dog's paws). I am shaken. Feeling vulnerable. Need to calm myself. Can't be jumping from one medical emergency to another... Just not ready. I asked the doc about my sluggishness (I take b-12 and tyrosine and a batch of other energy boosters daily) and asked about iodine. She insisted that, No, I am hyperthyroid, NO IODINE. She was adamant. I think I read that a low TISH can be confusing and in fact be a sign of hypothyroidism cause the body is confused... Lord knows I'm confused. No one has ever checked my iodine, unless -- I will check back w/my records when we had a wonderful female endo lady who moved away. I so trusted her, as did Paul. In fact, we were both in love with her... Get back to you on that... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...