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CoolBreeze · 10-26-2013, 04:41 PM

I think you are on the right track. I have liver mets. It didn't hurt for a long time, certainly not at diagnosis, but when it did it wasn't anywhere near where you describe. It's much higher, near the shoulder. Your liver isn't near the waist, your colon/intestines are so that's why I think you are on the right track now.

Cancer in the liver is pretty clear on scans so I'm sure they would have seen it.

In fact, they diagnosed me because I complained about lower back pain - in the area you describe but in the back. They did an abdominal CT and discovered liver mets, but it had nothing to do with that pain. Now, I know that it's muscular - post-mx and recon my shoulders have never been right and my back has been trying to compensate. I can feel that pain when I move my shoulders certain ways, which I didn't know or understand way back when.

I would say that since you are a belly dancer your muscles have been weakened by all the drugs you've taken and probably you suffer from that more than you know. And, if you still have constipation issues years after your treatment, than you understand it takes a long time to get back to normal. I don't think we all realize how serious these meds can be on us and how long it can take to get back to where we were before.

I think you can feel relieved that it's not mets and work on what it is. Keep that dancing going and colon lubricated.

LOL.

10-26-2013, 04:41 PM	#13
CoolBreeze Senior Member Join Date: Dec 2009 Posts: 562	Re: Someone walk me off the ledge please I think you are on the right track. I have liver mets. It didn't hurt for a long time, certainly not at diagnosis, but when it did it wasn't anywhere near where you describe. It's much higher, near the shoulder. Your liver isn't near the waist, your colon/intestines are so that's why I think you are on the right track now. Cancer in the liver is pretty clear on scans so I'm sure they would have seen it. In fact, they diagnosed me because I complained about lower back pain - in the area you describe but in the back. They did an abdominal CT and discovered liver mets, but it had nothing to do with that pain. Now, I know that it's muscular - post-mx and recon my shoulders have never been right and my back has been trying to compensate. I can feel that pain when I move my shoulders certain ways, which I didn't know or understand way back when. I would say that since you are a belly dancer your muscles have been weakened by all the drugs you've taken and probably you suffer from that more than you know. And, if you still have constipation issues years after your treatment, than you understand it takes a long time to get back to normal. I don't think we all realize how serious these meds can be on us and how long it can take to get back to where we were before. I think you can feel relieved that it's not mets and work on what it is. Keep that dancing going and colon lubricated. LOL. __________________ http://butdoctorihatepink.com 08/17/09 Dx'd. Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS HER2+ ER+/PR- Grade 3, Node Negative 10/20/2009: Right mastectomy, reconstruction with TE 12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy 03/31/2010: Finished chemo 05/01/2010: Began tamoxifen, the worst drug ever 11/18/2010: Reconstruction completed 12/02/2010: Finished herceptin 05/21/2011: Liver Mets. Quit Tamoxifen 06/22/2011: Navelbine/Zometa/Herceptin 10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure! 11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years" 03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa 10/10/2012: Progression continues, started Halaven, along with herceptin and zometa. 01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa 03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta. 04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success! 05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo. 06/07/2013: Fiducial placement for SBRT 07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone 07/25/2013: SBRT (gamma knife) begins 08/01/2013: SBRT completed 08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa 06/18/2014: *** NED!!!!*** continuing with Perjeta, Herceptin, Zometa 01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly. 11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted. 5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean. I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.