HER2 Support Group Forums - View Single Post - Neuropathy from Avastin

Andrea Barnett Budin · 10-07-2013, 05:02 PM

Jilly,

I am right here with you. Beyond hoping. ASSUMING. (See A SIMPLE FORMULA FOR CHANGING THE FUTURE thread please.) Everything I want to say to you right now seems to be in there...

You did the right thing (emerg rm) and ruled out... Now move forward -- living AS IF what you want is already a reality. Why? Cause it is! You just have to have faith and step into it and live it. With tenacity! And love.

A 2 and 4 yr old? Oh my. How blessed. Joyful. Challenging under the best of circumstances. Marriage! Life's best is yours! I believe it. Sending my Love and healing Light,

Andi

10-07-2013, 05:02 PM	#6
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: Neuropathy from Avastin - infusion #1 Jilly, I am right here with you. Beyond hoping. ASSUMING. (See A SIMPLE FORMULA FOR CHANGING THE FUTURE thread please.) Everything I want to say to you right now seems to be in there... You did the right thing (emerg rm) and ruled out... Now move forward -- living AS IF what you want is already a reality. Why? Cause it is! You just have to have faith and step into it and live it. With tenacity! And love. A 2 and 4 yr old? Oh my. How blessed. Joyful. Challenging under the best of circumstances. Marriage! Life's best is yours! I believe it. Sending my Love and healing Light, Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...