|
Re: Kadcyla...Improvement but Leg Pain
Hi Ceesun, I am soooo happy that Kadcyla seems to be working. I hope the next scan will bring you to Ned. Yes I have pain and cramps and neuropathy in my legs. But what is strange is that some rounds I have a lot of pain and some I have almost none.The doctors had me take magnesium for some time because of the cramps in my feet and because I also had problems with my eyelids jumping a lot. I do not know if this is very helpful or if it is a placebo. Karen's suggestion may be better. Of course the dose reductions I had helped also. I know that the neuropathy part comes from my first treatment with Taxol. Kadcyla just wakes it up but it is manageable. As for the chills I must have had them only twice on over 25 rounds now. Why those 2 times and not the others, nobody knows but I was not worried since it seems to be a frequent se.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
|