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Andrea Barnett Budin · 06-23-2013, 12:26 PM

NEUROPATHY. Veryyy toooo familiar with that.

L-CARNITINE 500 (AM/PM)
CO-ENZYME Q10 150 (AM/PM)
ALPHA LIPOIC ACID 300 (AM/PM)
B-12 -- 3,000 - 5,000 EARLY IN AM

Makes a world of difference!!!!!!!!!!!!!

I also take B1, B2, B5 (pantothenic Acid), B6 50 --
and Folic Acid 400

And, Karen, you know I have a few liver detoxifiers I rely on since '98... Ask and I will list...

I don't love being in a trial where decisions are taken out of my hands and given to drug company. For whatever that's worth.

Please tell me what 4.4 expression score means.

If it's that it is highly aggressive -- CUT IT OUT! Far easier said than done. But, there's only 1...? Evict him.

Sending Love and Healing Energy your way, Karen, as always...

Andi

06-23-2013, 12:26 PM	#13
Andrea Barnett Budin Senior Member Join Date: Oct 2005 Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW... Posts: 1,904	Re: And The Options Are... NEUROPATHY. Veryyy toooo familiar with that. L-CARNITINE 500 (AM/PM) CO-ENZYME Q10 150 (AM/PM) ALPHA LIPOIC ACID 300 (AM/PM) B-12 -- 3,000 - 5,000 EARLY IN AM Makes a world of difference!!!!!!!!!!!!! I also take B1, B2, B5 (pantothenic Acid), B6 50 -- and Folic Acid 400 And, Karen, you know I have a few liver detoxifiers I rely on since '98... Ask and I will list... I don't love being in a trial where decisions are taken out of my hands and given to drug company. For whatever that's worth. Please tell me what 4.4 expression score means. If it's that it is highly aggressive -- CUT IT OUT! Far easier said than done. But, there's only 1...? Evict him. Sending Love and Healing Energy your way, Karen, as always... Andi __________________ Andi BB '95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive... '98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!) + good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either... Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...