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Old 05-17-2013, 05:55 AM   #5
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Talking Re: brain mets update from IL

Kim!
What great news!
This the kind of news I've been hoping to read about your Mom.
You must be over the moon!
Thrilled!
Floating on air!
I sure would be!

Love all that shrinkage and stability news! Woo hoo!

On the other hand...I know how debilitating bone pain can be. And when it wears on and on like hers has...she must be exhausted physically, mentally, and spiritually.

I wonder...is it possible to consult a pain specialist? Until recently, I didn't even know there were doctors who specialized in pain management. I saw one when my back pain was at its peak, and nothing the other docs tried had any affect on the pain. Wow! What a difference when they called in the pain expert! It might be worth a try.

Sending a giant hug, and lots of love your way!
And, please give my best regards to your Mom too!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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