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dearjilly · 05-15-2013, 12:08 PM

Thanks so much Denise. I love your colours and refreshing message. I do, I feel refreshed after reading it!

I am very happy. I am happy because I feel that I just went with my gut, as they were ready to biopsy immediately and I said NO!

So, all is well and my yard will be full of empty pill jars soon too. lol hahaha...funny.
Yes, the wedding was the best! Loved every moment, even if the pictures show the moon face, all is good!
I am going on a trip to NYC next, so hopefully this time I will be dex free!
Since I my last post, I saw my MO. We are not going on the lapatinib, but instead, looking for a clinical trial. That suits me just fine. All is well.
Much love and hugs to you! Let me know how the avastin is going. I'm VERY curious.
Jill xoxo

05-15-2013, 12:08 PM	#44
dearjilly Senior Member Join Date: Feb 2012 Location: Ontario, Canada Posts: 115	Re: Progression or Necrosis in the brain? Thanks so much Denise. I love your colours and refreshing message. I do, I feel refreshed after reading it! I am very happy. I am happy because I feel that I just went with my gut, as they were ready to biopsy immediately and I said NO! So, all is well and my yard will be full of empty pill jars soon too. lol hahaha...funny. Yes, the wedding was the best! Loved every moment, even if the pictures show the moon face, all is good! I am going on a trip to NYC next, so hopefully this time I will be dex free! Since I my last post, I saw my MO. We are not going on the lapatinib, but instead, looking for a clinical trial. That suits me just fine. All is well. Much love and hugs to you! Let me know how the avastin is going. I'm VERY curious. Jill xoxo __________________ [ Feb 2013 - NED Mar 2013 - thought I had progression, watching brain. April 2013 - GOT MARRIED!!!! May 2013 - looks like no progression, but necrosis and bigger. Oct-Dec 2013 - Avastin tx Nov 2013 - MRI shows necrosis shrinkage!!!! Jan 2014 - Lepto Mening. disease found Feb 2014 - WBR March - BLAHHHH April 2014 - Liver mets found April 2014 to present - Chemo again, whooohoo. Fun! July 2014, scans look good. Stay on Perjetand hercertin. Nov. 2014 more lepto-mening disease more WBR. Feb 2015 more lepto-mening disease in spine and neck. More radiation. Start on TDM1 no more Perjeta stay on herceptin March 2015 more radiation in my thoracic area, more lepto-meningial disease April 2015 trying to walk again. [/SIZE][/FONT]