HER2 Support Group Forums - View Single Post

dchips1 · 05-07-2013, 08:57 AM

so TRUE WHEN i WAS DX STAGE 4 IN 2006 EVERYTHING OUT THERE WAS PALLIATIVE CARE. then I found this web site, to me there are certain ways I have to handle a new anything. I an a Nurse so you have the nurse side which was staying up all night researching the internet (2006) a lot slower less reporting, the wife side and the mom side. Once I found this site and took others trials and errors, then i was able to take that info and thanks to people like LANI full genuine published data to my Onc, to discuss , different options of care, treatment of cancer and side effects.
God Bless us All, peace and prayers for continued healing, good drugs, doctors, and Insurance companies to cover our stuff!!

Darita Pfeister

05-07-2013, 08:57 AM	#8
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: NOW this IS ASTOUNDING!!!!! so TRUE WHEN i WAS DX STAGE 4 IN 2006 EVERYTHING OUT THERE WAS PALLIATIVE CARE. then I found this web site, to me there are certain ways I have to handle a new anything. I an a Nurse so you have the nurse side which was staying up all night researching the internet (2006) a lot slower less reporting, the wife side and the mom side. Once I found this site and took others trials and errors, then i was able to take that info and thanks to people like LANI full genuine published data to my Onc, to discuss , different options of care, treatment of cancer and side effects. God Bless us All, peace and prayers for continued healing, good drugs, doctors, and Insurance companies to cover our stuff!! Darita Pfeister __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.