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Lani · 05-06-2013, 04:50 PM

THIS MEANS I HAVE POSTED ON HER2SUPPORT 1/1000TH OF ALL POSTS ON ALL BREAST CANCER-SPECIFIC SITES WORLDWIDE AND THAT THIS SITE IS ONE OF TENBREAST CANCER SITES WORLDWIDE WITH OVER 100,000 POSTS.

I HOPE WORD OF THIS GETS TO CHRISTINE!

Supportive Care in Cancer
May 2013, Volume 21, Issue 5, pp 1253-1263
Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use
Jacqueline L. Bender, M. Carolina Jimenez-Marroquin, Lorraine E. Ferris, Joel Katz, Alejandro R. Jadad
Purchase on Springer.com
$39.95 / €34.95 / £29.95 *

Abstract
Purpose
Online communities have been heralded as one of the most promising health resources on the Internet. The purpose of this study was to identify the characteristics and levels of use of online communities for breast cancer survivors.
Methods
Using Google, we identified websites with a string of computer-mediated communication terms and individual queries of three to five words of online community terms. This was complemented by a review of website resource lists and personal libraries. Two reviewers independently extracted information on their general characteristics and number of members and message board posts. A coding scheme guided content analysis.
Results
We found 111 websites. Most sites (n = 64, 65.8 %) had a broad focus (e.g., health, cancer, or general). One third (n = 38, 34.2 %) were exclusive to breast cancer and 11 catered to specific disease characteristics. The majority were American (n = 79, 75.2 %), nonprofit (55.0 %), and moderated (69.5 %). Most moderators (85.7 %) were staff or community members; eight sites were moderated by health professionals. Greater than one-third of sites (n = 40, 36 %) were initiated by breast cancer survivors or loved ones. Breast cancer-specific sites contained a total of 4,186,275 posts. One-third (n = 10) contained 93.4 % of posts, displaying over 100,000 posts each. As of April 3, 2012, eight sites were discontinued.
Conclusions
There is a wide range of online communities available for breast cancer survivors with extensive archives of personal illness experiences. Future efforts should focus on identifying the factors that determine their success and effectiveness.

05-06-2013, 04:50 PM	#1
Lani Senior Member Join Date: Mar 2006 Posts: 4,778	NOW this IS ASTOUNDING!!!!! THIS MEANS I HAVE POSTED ON HER2SUPPORT 1/1000TH OF ALL POSTS ON ALL BREAST CANCER-SPECIFIC SITES WORLDWIDE AND THAT THIS SITE IS ONE OF TENBREAST CANCER SITES WORLDWIDE WITH OVER 100,000 POSTS. I HOPE WORD OF THIS GETS TO CHRISTINE! Supportive Care in Cancer May 2013, Volume 21, Issue 5, pp 1253-1263 Online communities for breast cancer survivors: a review and analysis of their characteristics and levels of use Jacqueline L. Bender, M. Carolina Jimenez-Marroquin, Lorraine E. Ferris, Joel Katz, Alejandro R. Jadad Purchase on Springer.com $39.95 / €34.95 / £29.95 * Abstract Purpose Online communities have been heralded as one of the most promising health resources on the Internet. The purpose of this study was to identify the characteristics and levels of use of online communities for breast cancer survivors. Methods Using Google, we identified websites with a string of computer-mediated communication terms and individual queries of three to five words of online community terms. This was complemented by a review of website resource lists and personal libraries. Two reviewers independently extracted information on their general characteristics and number of members and message board posts. A coding scheme guided content analysis. Results We found 111 websites. Most sites (n = 64, 65.8 %) had a broad focus (e.g., health, cancer, or general). One third (n = 38, 34.2 %) were exclusive to breast cancer and 11 catered to specific disease characteristics. The majority were American (n = 79, 75.2 %), nonprofit (55.0 %), and moderated (69.5 %). Most moderators (85.7 %) were staff or community members; eight sites were moderated by health professionals. Greater than one-third of sites (n = 40, 36 %) were initiated by breast cancer survivors or loved ones. Breast cancer-specific sites contained a total of 4,186,275 posts. One-third (n = 10) contained 93.4 % of posts, displaying over 100,000 posts each. As of April 3, 2012, eight sites were discontinued. Conclusions There is a wide range of online communities available for breast cancer survivors with extensive archives of personal illness experiences. Future efforts should focus on identifying the factors that determine their success and effectiveness.