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Old 04-24-2013, 06:18 PM   #3
dearjilly
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Join Date: Feb 2012
Location: Ontario, Canada
Posts: 115
Re: Avastin shrinks necrosis?

Preserve vision? Sign me up for this Avastin. My goodness, I am going to ask my MO about this on Friday. I am desperate for anything to preserve my vision too. It's just gotten worse since the radiation to my brain met.
Denise, read this: http://www.naturalnews.com/034009_boswellia_inflammation.html
It's about an non steroidal anti inflammatory drug, an herb, for swelling and it even says it works on tumour necrosis. HUH?!
Jill
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Feb 2013 - NED
Mar 2013 - thought I had progression, watching brain.
April 2013 - GOT MARRIED!!!!
May 2013 - looks like no progression, but necrosis and bigger.
Oct-Dec 2013 - Avastin tx
Nov 2013 - MRI shows necrosis shrinkage!!!!
Jan 2014 - Lepto Mening. disease found
Feb 2014 - WBR
March - BLAHHHH
April 2014 - Liver mets found
April 2014 to present - Chemo again, whooohoo. Fun!
July 2014, scans look good.
Stay on Perjetand hercertin.
Nov. 2014 more lepto-mening disease more WBR.
Feb 2015 more lepto-mening disease in spine and neck. More radiation.
Start on TDM1 no more Perjeta stay on herceptin
March 2015 more radiation in my thoracic area, more lepto-meningial disease
April 2015 trying to walk again.
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