HER2 Support Group Forums - View Single Post - IT Perjeta? For those with Brain and/or spine involvement

dchips1 · 04-23-2013, 02:55 PM

thanks again as always, get my #2 of 42 mg this week, the herceptin is coming from my rx part of health insurance, the will send enough to due weekly. They must already get some kind of crazy discount on these drugs, my tykerb, and Herceptin, orders say say copay adjustment program.

I am still on 1 mg decadron still a little headache, but driving self around, use a walk if no cart to go through stores, and getting ready for summer here in the desert. I will too probably stick to the herceptin, IT and IV, along with my Tykerb for now. Save it for future arsenal. after the 4th 42mg , I think if all goes well should be able to go up another 21mg.x 4, as long as scans are stable, then on to 1.5mg/kg.

Take care and prayers for healing and those who are seeking better options than the "old school" stuff.
Darita

04-23-2013, 02:55 PM	#7
dchips1 Senior Member Join Date: May 2006 Location: Mesa, Az Posts: 219	Re: IT Perjeta? For those with Brain and/or spine involvement thanks again as always, get my #2 of 42 mg this week, the herceptin is coming from my rx part of health insurance, the will send enough to due weekly. They must already get some kind of crazy discount on these drugs, my tykerb, and Herceptin, orders say say copay adjustment program. I am still on 1 mg decadron still a little headache, but driving self around, use a walk if no cart to go through stores, and getting ready for summer here in the desert. I will too probably stick to the herceptin, IT and IV, along with my Tykerb for now. Save it for future arsenal. after the 4th 42mg , I think if all goes well should be able to go up another 21mg.x 4, as long as scans are stable, then on to 1.5mg/kg. Take care and prayers for healing and those who are seeking better options than the "old school" stuff. Darita __________________ dx 1/06 IDC 2cm 38 at dx 2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis 3/06-9/06Taxol/Carbo/zometa/Herceptin 3/07 6 brain mets WBR down to c-2 4/07 osteonecrosis jaw 1/08 mri new 9mm lesion right lower side 2/08 gamma knife 1 lesion 11/08 regamma 10/09 latent rad necrosis to brain met, 1/20/10 crani: lesion necrosis w active cells continue her add tykerb 1/11 NED just Ingrown toenail! YEAH GOD 8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans oct -march 11 new neuro deficits lower legs 3/12 2 spinal metsTykerb, Herceptin 04/12 4050cGY rads T 2-4 & T7-9 5/12 Brain,cervical lumbar clear/thoracic slight decrease 10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly. 9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec. last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative. 10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney! 12/13 Mri brain no new lesions, cervical and lumbar arthritis. Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain 1/29/14 HIHO HIHO its off to Neuro surgery I go Life is Good when you wake up in the morning and take a breath and know that God has given me another day.