HER2 Support Group Forums - View Single Post - Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastases)

marvass · 03-24-2013, 06:07 AM

Last Thursday my wife had a seizure which was not strong, but could not go away. Had to take her to emergency and even with 20mg valium could not stop, well it took over 4 hours to control, but still she is having twitches in her hand, continuously. Looks like she has some damage now. A scan done yesterday resulted in that there are no brain hemorrhage and that no more tumors are visible except for the edema that she had. She is on 6mg steroids (dexametasone) and muscle relaxants (ativan and rivotril), plus 3000mg keppra and 300mg epanutin daily but still with these continuous twitches. Don't know what to do. Anyone has an idea?

03-24-2013, 06:07 AM	#13
marvass Senior Member Join Date: May 2012 Posts: 105	Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase Last Thursday my wife had a seizure which was not strong, but could not go away. Had to take her to emergency and even with 20mg valium could not stop, well it took over 4 hours to control, but still she is having twitches in her hand, continuously. Looks like she has some damage now. A scan done yesterday resulted in that there are no brain hemorrhage and that no more tumors are visible except for the edema that she had. She is on 6mg steroids (dexametasone) and muscle relaxants (ativan and rivotril), plus 3000mg keppra and 300mg epanutin daily but still with these continuous twitches. Don't know what to do. Anyone has an idea?